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5 resources to help navigate autism and puberty

July 24, 2015

5 resources to help navigate autism and puberty

The tween years and puberty go hand in hand, one is a defining aspect of the other. And with that combination seems to come a heap of confusion, stress, high tempers and tears, and that’s not just the kids.

When you throw Autism in the mix, as is our situation, it adds another level of challenge, one that I’m mostly completely un-prepared for.

I recently attended at session at Amaze (Autism Victoria) who kindly took all of us scared parents through a workshop on how best to prepare for the coming years.

Here are some of the resources they shared that night, which I thought might be helpful for you too…

  • La Trobe University’s “Puberty: A Guide for Teenagers with ASD and Their Parents” can be downloaded here. It has a bunch of social scripts for everything from showering regularly to periods.
  • Raising Children Network (which you can find here) has a bunch of social stories as well as information fact sheets for parents and videos as well. They cover the emotional side of things, as well as the physical things.
  • Footprint Books (here) has a huge range of books and resources for both girls and boys going through puberty as well as just general books about Autism. If you love exploring online bookstores, then you’ll love this.
  • Family Planning Victoria (here) isn’t probably the first place I would have thought of to start, but they have a large range of fact sheets, books, as well as videos, which might be easier for some kids. There’s also information about sexual health and safe sex, which I know we we’re going to need at some point (hopefully later rather than sooner…).
  • Amaze (Autism Victoria) runs information sessions, as well as having a bunch of resources available as well. You can find them here.

If you’re stressing about puberty, maybe take a moment to check these out. If you’re anything like me, you’ll want to get your hands on as much information as possible to prepare yourself as we hurtle headlong into the next stage of parenting.

Well prepared is well armed. Or something like that.

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A version of this article was originally published on About a Bugg here.

Leave a Comment Filed Under: Health Tagged With: Autism, kids and adolescence, Puberty

Let me catch up

May 26, 2015

LWT Let me catch up

Earlier last month I sat in a conference room, with a coffee urn bubbling away in the background and freshly baked biscuits on the table, along with a bunch of other parents, teachers and my mother while we discussed masturbation.

If that sentence seems confronting, you should have been in the room.

There was a purpose to this; it wasn’t my idea of a fun was to pass a Thursday night. Instead we were there to learn about sexuality and puberty in adolescents with Autism. Which in and of itself is a pretty big idea to get your head around and the 35-odd slide Powerpoint presentation did little to dull the pain.

I know we have to have these conversations. I know it’s time. In fact according to the slides, we’re late. We should have started almost two years ago. Poss is certainly on the threshold of that next phase; we’ve grown her through her baby years, dragged her through her toddler years and we’ve all survived childhood. Next up is the teen years.

After all these other stages of parenting her, this is the one that scares me the most.

And it’s not because I’m squeamish about talking about masturbation or sex or how to put a condom on a banana, it’s just because I’m so not ready for this next phase. It seems like it was just yesterday she was pushing away from the table, taking her first steps. Now she’s pushing away from us.

I worry that she’ll do just what she did when she started to walk; run hard, fall over and smack her head before getting back up and doing it all over again. However, when she was a toddler, I was able to hold her, wipe away her tears, kiss her forehead and make it better. I’m not sure I can do this for her when it comes to puberty.

I worry that we won’t know how best to help her, how best to support her. Occasionally I can see the glimpses of an amazing woman starting to push through the wrapper of this gangly tween; I know she’s under there. But to keep her safe and make sure she doesn’t break before she even gets there? I don’t know. And it wasn’t in the Powerpoint pack.

I promise to do a more helpful post on this topic shortly; there are books to read, links to look at, ideas to wrap my head around. Endless tips and ideas to help trouble shoot the practical and assist with the hard conversations.

But right now, all I seem to be able to do is watch her while she sleeps; those big long jersey cow lashes resting softly on her cheeks as she breaths softly into the night, wishing I could just stop the clock.

Just for a moment, just a second, to let me catch up.

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This post was originally published on About a Bugg.

Leave a Comment Filed Under: Health, Life Tagged With: Autism, Parenting, Puberty

Top books for Tweens with Autism

May 1, 2015

Top books for Tweens with Autism

We found out we were pregnant with Poss the week of our wedding. It was a Tuesday in June and completely unexpected. A happy surprise, the ultimate wedding gift to ourselves. Or that’s how I remember it. I’m not certain, but I think that might have been when Husband’s hair started to fall out.

That night we went out to dinner to celebrate. And as soon as we were done, we stopped at the grocery store on the way home and I bought every single magazine they had that related to babies.

Over the coming weeks, I devoured everything I could lay my hands on.  Forewarned is forearmed. Or something like that. Swapping bridal magazines for a world of baby; soaking up knowledge like a sponge.

Each week we’d read up about what size she was, what was growing, measuring her against random pieces of fruit and vegetables and counting down until she was born.

Then came the baby books, the toddler books and eventually, the parenting books, because try as we might, she wasn’t doing the things in the other books the way they said she should, and maybe if we just parented her differently it would be ok.

Eventually the diagnosis of Autism was made, and the books made more sense. Turns out they weren’t for us. So a new set of books was bought. Doctors, therapists, dieticians, teachers and other parents all offering their advice.

I read them all. Soaked it in and learned the new language of ASD.  The more I knew, the more comfortable I became and I started to work out, that just like the baby books, some were better than others; some were simply more ‘us’ than others.

Books like The Complete Guide to Aspergers Syndrome by Tony Attwood became a guide to navigate our new world and they’ve served me well over the years. Acting as references and reassurances, my well thumbed copies sit on my bedside table all this time later.

And now (you might be sensing a pattern about how I deal with life…), as we approach a new stage, tweens and teens, I’m in search of a new set of books to help us.

I’ve grabbed copies of these two: The Asperkid’s Secret Book of Social Rules and Aspergers Rules; How to make sense of school and friends, as well as a copy of Special Girls Business.

Each has it’s own benefits, but the first two are quite similar. Lots of tips and quizzes, easy to read with lots of information on everything from how to make friends, to how to keep them and they’re written specifically for the kids themselves.

We’ve been working our way through them with Poss and she seems to be finding them as useful as I do. While she’s no doubt learning things, there’s also been a few lightbulb moments for me when I realise she doesn’t know something that I just assumed she would know.

Poss has them both on her bedside table and she’ll often pick out bits to read to me, checking if she’s understanding it right.

The other book is a bit different and is focussed on puberty and hygiene. Poss refuses to read it, and despite me subtly leaving it on her bedside table, it’s been shoved back into the linen cupboard multiple times. I’ve stopped asking her about it and I’m hoping she’ll come it on her own terms.

Meanwhile, I’ll keep scouring the online book stores and trying to find the ones that will give me the elusive keys, or just the words to follow, as we step into this next phase.

Do you have any favourite books to recommend? What should I be reading?

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This post originally appeared on About a Bugg.

Leave a Comment Filed Under: Social Tagged With: Autism, Books

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    Meet the Life with Tweens team

    Meet the Life with Tweens team

    Kim, Renee and Caro are parents living with a primary-schooler, a handful of Tweens, the odd Teen, seven dogs, six fish, two cats and a fat rabbit. Each day is an adventure, to say the least.

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